We are hoping to understand more about why there are significant ethnicity and gender disparities to receiving deep brain stimulation for people living with Parkinson’s disease. We are hoping to explore this issue from the experience of care partners, caregivers, family and friends of people with Parkinson’s disease
Exploring the informal caregiver perspective: Disparities in accessing deep brain stimulation forParkinson’s disease
- Run Dates:
- Ongoing
Who is eligible to participate in the study?
Informal caregivers, care partners, family members and friends of people with Parkinson’s disease who are at any stage of the DBS process (pre-referral, referral, workup, waitlist, or recipients).
What is required of the participants?
Participants will be asked to complete two surveys involving demographic questions and to assess your overall mental, physical, and psychological well-being.
Participants will also be asked to undergo one 30-45 minute semi-structured qualitative interview either inperson or over Zoom/phone call. The interview will explore experiences of informal caregiving in the process of their loved one accessing deep brain stimulation.
- University:
- University of Alberta
- Contact:
- Shaina Corrick
- shaina.corrick@albertahealthservices.ca
- 780-991-2465
- Ethics ID:
- Pro00104715