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Ethnic and Gender Disparities in Access to Deep Brain Stimulation

The University of Alberta Parkinson and Movement Disorder Program is seeking volunteers to participate in our study “Ethnic and Gender Disparities in Access to Deep Brain Stimulation (DBS)”. The goal of this project is to find out what the potential factors are contributing to varying levels of DBS access. Our current data showed that far less women and non-Caucasian patients receive DBS. Therefore, the study will focus on women and non-Caucasian peoples’ experiences to better understand the potential challenges faced

Who is eligible to participate in the study?

  • You have a diagnosis of Parkinson’s Disease, Cervical Dystonia, or other movement disorder
  • You are aged 18 to 75
  • People of all genders are eligible to participate
  • Individuals who were suggested by their healthcare practitioner that DBS could be beneficial, but have
    not yet undergone the procedure
  • People who are reluctant to go through DBS work-up or surgery

What is required of the participants?

  • Engage in a virtual interview, lasting for 30-40 minutes
  • Answer questions related to your disease experience, symptoms, decision-making, any relevant knowledge on DBS