Initially, doctors told me my symptoms weren’t “typical” for Parkinson’s, given my age and no family history. But after a year of evaluation, I received the diagnosis. My neurologists admitted they had never diagnosed or worked with someone my age and gender. I felt like an outlier—alone, scared, unsure of what the future held, for me and my family.
I was in shock, mourning the life I thought I had lost.
The first couple weeks post-diagnosis were rough. I immediately told my husband, parents and close friends and remained incredibly reserved about the stigma associated with “coming out of the Parkinson’s closet” to anyone else. I didn’t and still don’t want to feel or be treated any differently.
After that first month, things really started to change. I doubled down on yoga (a great dopamine booster) and focused on practicing gratitude. Yes, my future is unknown and outside my control but isn’t everyone’s? Is it still a bit of a challenge to balance the stigma of “being disabled”? Sure. I often feel like I have imposter syndrome either way. Do I think that will ever go away? Maybe. Maybe not. And I’m OK with that.
I now view my diagnosis as a gift – a chance to be more present, brave, and authentic. I’ve pivoted my career to better align with my core values: family, flexibility, and creativity. I spend more time with my family and friends and do a lot more of what I love. I’m grateful for the new opportunities Parkinson’s has brought, and thankful that Parkinson Association of Alberta is close by, if ever and whenever I may need additional supports.
I hope you decide to support them today, knowing it will help the thousands of people in Alberta living with their own PD diagnosis, and their futures.
