When I was diagnosed with Parkinson’s back in 2021, I was not sure where, or whom, I could look to for information and supports. In my case, I have many loving and supportive caregivers; Sue Chappelle, my wife of 44 years, my three children, Chris, Corey and Laura, and many close friends.
Parkinson Association of Alberta, and the Buchanan Centre in Edmonton, were also there for me. I have met many wonderful and caring people there, including all the staff, who always ensured I had all the information and options available to me, and always made me feel welcome and important.
The ongoing, and personal support I have received from this entire group of people has kept me feeling positive about life. They have shown me that regular exercise is an extremely critical and important component that slows the progression of Parkinson disease, and that I can be active anyway I want, at any time, anywhere.
Once a month, I participate in Support Group meetings in Sherwood Park with fellow Parkinson’s friends and their caregivers, whom I’ve grown to value very much. These meetings give me an opportunity to share my questions and concerns, and feedback, with others who are also walking a similar path as me.
For the past couple of years, I’ve also been heavily involved in some of PAA’s fundraising events, such as Cars for a Cause, which gives me a chance to share my passion and knowledge for old cars, and Step ‘n Stride, where Sue and I can volunteer and help others in our community have a great day walking, and enjoy the camaraderie, sunshine and active fun!
I know how important fundraising is to Parkinson Association of Alberta, it is the number one way they are able to continue providing the supports and programs they do, across Alberta, for so many people.
My message to newly diagnosed PD patients is to keep a positive outlook, keep active and exercise, socialize and share your experiences with your caregivers, family and friends.
And most of all, remember, you are not alone in the journey.
